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Living with Tinnitus

Hi my name is Bill.  I have had tinnitus for 9 years, it is a constant hissing in my right ear, I often find  it difficult to describe to friends and relatives or people I meet what tinnitus is and how it affects me as they have not suffered with the condition.

Since meeting fellow tinnitus sufferers at the Tinnitus Support Group, at the Deafness Resource Centre in St Helens, I have gained reassurance and recognition that there is a condition called Tinnitus.  Other group members have had similar events that have caused their tinnitus e.g.  An accident at work or exposure to loud machinery for long periods or even the death of a relative.

Staff at the Deafness Resource Centre in St Helens are trained by the British Tinnitus Association and understand the condition and can offer advice and support.

A guest speaker at the Tinnitus Support Group gave out useful techniques for distracting attention away from the noise.  One of the techniques was to imagine that the tinnitus sound is actually waves cascading over the rocks at the seaside.  I have used this to help control my tinnitus and found it to be really helpful.  I have also used the soothing mood and light sensor pyramid which helps blend traffic noise going past my house.  Overall, this has a calming effect on my stress levels.   I would really recommend that if anyone is struggling with their tinnitus, or people who want to know more about it, you should come along to the Tinnitus Support Group.  You will be made welcome and certainly once you understand more about Tinnitus will be able to learn how to cope with it.

How Deafness Resource Centre helped our Family

My daughter is 9 years old and until recently we didn’t know is she was profoundly deaf as she has many complex health issues that have always took priority.

Until late last year we were communicating with our daughter using Sign along and Pecs pictures. At a school event we seen a stall for the Deafness Resource Centre, since then we have never looked back we have had so much support from signing / schooling / Happy Hands etc, more recently we have Joy as part of the volunteering scheme, which has been nothing more than a god send.

My Daughter has taken to Joy extremely well and has built up a friendship that is lovely to see. Joy has given us all so much support from working 1-2-1 with my daughter on getting her to understand hospital visits more clearly, and especially helping with a transition to her new school.

Without the support and help from Joy and the Deafness Resource we would still be dealing with a very frustrated and un -happy little girl whereas now we have a little girl who wants to communicate and is getting much more confident in herself.

Since I was asked to do a case study before, Joy has become more and more important to us as a family and recently my daughter has had to have a serious operation and Joy has done a lot of work with her on what is happening and why it is being done.  On the day of her operation Joy came with us to the hospital and communicated with my daughter all that was being said to her and stayed with us until she went under the anaesthetic.  All the nursing staff and the doctors commented on how different my daughter was for this operation and how much difference it made to her having the process communicated in a way she could understand.

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